Welcome to the IRASPEN Registry.
The International Rare And Severe Psoriasis Expert Network (IRASPEN). A Prospective Registry With Genotype-Phenotype Correlation. IRASPEN has arisen from the European ERASPEN registry that sought to harmonize the phenotypic descriptions and diagnostic criteria. Now we are looking for longitudinal follow-up data, more detailed clinical information including treatment response data, as well as biological samples and biomarkers we can measure and correlate with clinical outcomes.
The registry data should lead to a better understanding of pustular psoriasis with the ultimate aim of improved patient care.